AutoImmunity Community Forum Index
 Home  | Forum Rules  | FAQ | Search | Memberlist | Usergroups  | About  | Links  | Register 
 New! Blogs | Newsletters | Spread the word | Profile | Log in to check your private messages | Log in
We comply with the HONcode standard for trustworthy health
information:
verify here.

Advertisements:


12 year old daughter

 
Post new topic   Reply to topic    AutoImmunity Community Forum Index -> Multiorgan Syndromes
View previous topic :: View next topic  
Author Message
debbiejoy
Newcomer


Joined: 02 Sep 2009
Posts: 1
Location: ct
PostPosted: Wed Sep 02, 2009 2:02 am    Post subject: 12 year old daughter Reply with quote
My 12 year old daughter was diagnosed with MCTD a few weeks ago. This has been a shock to me. I have been reading many websites trying to understand what this all means and what kind of life she will have.

It makes me sad to see how many people struggle with pain in life.
Back to top
View user's profile Send private message
jasonjuul
Newcomer


Joined: 27 Jul 2010
Posts: 2
Location: Massachusetts, USA
PostPosted: Tue Jul 27, 2010 4:44 pm    Post subject: Reply with quote
Hi Debbie,

I just found this forum so I apologize for the belated reply. My 15 year old daughter was dx'd with MCTD back in 2003 when she was 8. I would be interested to hear how your daughter is doing and would be happy to share with you how my own daughter is doing.

My daughter is being treated at Children's Hospital in Boston. She is currently on Cellcept, 1.5g 2x a day. Overall she is doing well except her Pulmonary Function Tests have been declining over time. She is not symptomatic and her nailbed capillaries look good, so her Ped. Rheum. wants to stay the course as far as her meds go. Her only outward manifestation of MCTD is her Raynauds, which has been fairly quiet due to the warm summer weather.

Well, I hope you see this reply to your post.

-John M.
_________________
MCTD, Daughter, Dx'd 2003 at age 8
Back to top
View user's profile Send private message Send e-mail
lacyjay87
Newcomer


Joined: 03 Sep 2010
Posts: 14
Location: Kentucky
PostPosted: Sat Sep 04, 2010 2:00 pm    Post subject: Question Reply with quote
Does that mean she has Lupus?
If so, I have some information on it.
_________________
**~Lacy~**
Yesterday is history, tomorrow is a mystery, but today is a gift. That is why it is called the present.”
Back to top
View user's profile Send private message
Display posts from previous:   
Post new topic   Reply to topic    AutoImmunity Community Forum Index -> Multiorgan Syndromes All times are GMT
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum


This site is best viewed with Firefox.

Get Firefox!


Disclaimer: Information contained on the AutoImmunity Community (hereafter referred to as "AIC") website is intended solely for general educational purposes and is not intended nor implied to be a substitute for professional medical advice relative to your specific medical condition. At no time is information on AIC's website intended to provide or confirm a diagnosis, nor is any claim made as to the therapeutic safety or effectiveness of any medications, tests, course of treatment, or the subjects of any other discussions.

Always seek the advice of YOUR physician or other qualified healthcare provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies.

AIC, its volunteers and Medical Advisors assume no liability whatsoever for direct, indirect, special, or consequential damages relating in any way to the use of information provided on AIC's website.

(Click here to read the rest of AIC's Disclaimer in it's entirety).





Home  |  Disclaimer  |  Privacy Policy  |  Contribute  |  Contact


Site last updated: 03/14/2009

Copyright © 2004-2009 Barry W. Andrews

Powered by phpBB © 2001, 2005 phpBB Group